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Karista’s founder said the mothers seeking help were often undiagnosed themselves

In short

Karista’s founder told the 2024 Melbourne technology panel that the company had taken close to 80,000 requests, mostly from mothers of young autistic children, and that many of those mothers were neurodivergent without a diagnosis.

Read it instead, 5 minutesThe transcript

The story

5 minutes to read. Written by Think Talks from the recording.

The founder and chief executive of Karista gave the 2024 Autistic Pride Day Symposium in Melbourne a picture of who asks for help when a child is identified as autistic. Karista is a technology company that connects people with disability to service providers, and its founder said it had taken over 70,000 requests, close to 80,000, from autistic people and mainly their parents. Mostly, the founder said, it is mums who come to Karista, for children diagnosed fairly early, and the children are generally about six, seven or eight when they come in. And “usually something’s happened at school”.

The finding the founder offered later in the session was about the mothers themselves. Asked how Karista brings lived experience into its design, the founder said the team talks to every person who submits a request. What the company discovered early, the founder said, was that while it is usually the mother making the request, those mothers are usually undiagnosed neurodivergent people. Karista had to work through that carefully, and the way it did so was to record new feedback in every conversation and to sit down as a team, in the office, to talk it through.

Sources the story draws on

  1. Autism in Australia, 2022 (opens in a new tab), Australian Bureau of Statistics
  2. Exploring autistic traits in parents of autistic children: a pilot study on the broader autism phenotype (opens in a new tab), Frontiers in Psychiatry, vol. 16 (Narzisi, Busuoli, Fabbri Destro, Pinzino, Calderoni, Tancredi, Lombardo, Masi)
  3. 'Thriving Kids' could help secure the future of the NDIS. But what will the program mean for children and families? (opens in a new tab), UNSW Newsroom (Helen Dickinson, Anne Kavanagh, Catherine Smith; republished from The Conversation)
  4. Rushed Thriving Kids rollout risks leaving families without critical support, warns CYDA (opens in a new tab), Children and Young People with Disability Australia
  5. Thriving Kids (opens in a new tab), Australian Government (health.gov.au)

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